Grace grew up as a beautiful, curly-haired girl beaming with laughter and curiosity, dancing and twirling to her favorite songs, swimming regardless of temperature, telling jokes, testing cleaning products, running the bases, dressing up in gowns, chasing her dog, mapping her family tree, sneaking midnight snacks, naming her dolls and ever-the patriot, rarely missed an opportunity to sing, “The Star Spangled Banner.”
Her 16 years of life were surrounded in the enduring love of her parents and her remarkable and adoring brothers; spoiled with hugs, kisses and nurturing by her grandparents, and admired by her entire family.
Grace was born with Kabuki Syndrome, a rare multisystem disorder that caused a congenital heart abnormality requiring valve replacement surgery as a newborn and again at age 14. In addition, her diagnosis led to some developmental disabilities, that she did not allow to stand in her way—her strength and determination inspiring everyone around her.
Grace Campbell had a perfect soul, a riotous sense of humor, a dazzling mind, and an energetic independence. She could endear anyone with her barrage of telltale questions and would demonstrate pure joy when her favorite music was playing. She cherished her brothers and loved her family unconditionally. To know Grace was to be a student of humanity and marvel at the creativity and complexity of the human mind and the body’s ability to radiate a unique and profound beauty from within.
In December 2020, Grace was admitted to Phoenix Children’s Hospital after suffering from septic shock caused by endocarditis. Grace fought valiantly for weeks, but sadly lost her fight on December 31, 2020. On that day the world lost a dearly beloved daughter, an irreplaceable sister, and a beacon of pure honest hope to everyone she inspired.
The Grace Campbell Foundation (www.gracecampbell.net/donate) was started to benefit causes and groups important in Grace’s life and to carry on her legacy of love, kindness and acceptance.
